Burning Nights CRPS Support is a UK wide charity that works to improve life for those living with Complex Regional Pain Syndrome (CRPS). As a charity we raise awareness about the condition amongst the public, health and legal professionals by providing CRPS awareness sessions so that patients can be diagnosed quicker to enable treatment to start more rapidly.
We also offer support and detailed information to sufferers, their families and carers, by way of an evidence based website (www.burningnightscrps.org), an information and support helpline (01663 795055), an online community forum, email support (firstname.lastname@example.org) and social media support, an annual national conference and regional support groups. The charity is self-funding and relies entirely on fundraising, donations and contributions. Burning Nights CRPS support operates a 100% donation policy. All members of the Burning Nights team work on a volunteer basis and are in the main CRPS sufferers themselves and all are unpaid.
Complex Regional Pain Syndrome (CRPS) formerly Reflex Sympathetic Dystrophy (RSD) is a poorly understood condition which affects many people in the UK and across the globe is a painful and debilitating neuropathic condition that affects approximately 5% of all injuries that occur. According to research CRPS affects 1 in 3,800 people in the UK which is approximately 15,000 newly diagnosed cases every year, which doesn’t account for those who may have been undiagnosed or misdiagnosed. CRPS can cause a person to experience persistent, severe and debilitating pain. The condition may develop after an injury, surgery, stroke or heart attack, but the pain is out of proportion with the severity of the initial injury or trauma. The cause of Complex Regional Pain Syndrome isn’t clearly understood and CRPS awareness in the UK is low.